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NAMI-NYS Records Advocacy Video with

Congressman Paul Tonko

While Attending We Work for Health Summit

Click here to watch the video

NAMI-NYS's Matthew Shapiro with (clockwise from top) Congressman Paul Tonko (NY-20), Andrew Sperling, NAMI's Director of Legislative Advocacy, Congressman G.K. Butterfield (NC-1), Congressman John Katko (NY-24) along with Kaitlyn MacLeod and Jaime Venditi from New York Health Works, and Jim Messina, former Deputy White House Chief of Staff and one of the architects of the Affordable Care Act.

This past week was eventful in Washington D.C. for federal health care as the Senate did not produce enough votes to advance their proposed Better Care Reconciliation Act (BCRA), and NAMI-NYS was in the middle of the health care talks in the Capitol. NAMI-NYS Associate Director for Public Affairs Matthew Shapiro participated in the We Work for Health summit which saw him meeting with members of the New York Congressional delegation and other federal leaders.

The highlight was participating in an advocacy video with Congressman Paul Tonko (NY-20). In the video, Congressman Tonko and Matthew discuss how the BCRA would negatively impact mental health care as well as how investments must be made in research, housing with wrap-around services, first episode psychosis programs and ensuring the availability of mental health services in the community. Click here to watch the video.

The We Work for Health summit brought issues of patient access to Capitol Hill. Two of the main issues discussed were repealing the Independent Payment Advisory Board (IPAB) and reauthorizing the Prescription Drug User Fee Act (PDUFA).

IPAB is an element of the Affordable Care Act (ACA), which needs to be reformed, as it is an appointed board tasked with reducing Medicare costs. While costs are a legitimate concern, the argument is that the board should consist of elected officials who are accountable to constituents. Click here to learn more. Since 1992, the Prescription Drug User Fee Act (PDUFA) has provided patients timely access to more than 1,500 new drugs and biologics, including treatments for cancer, rare diseases, cardiovascular conditions, neurological conditions, and infectious diseases. Click here to learn more.

NAMI-NYS thanks New York Health Works for inviting us to participate in the summit and providing a platform to project our advocacy voice.

NAMI-NYS Holds Second Bowling Fundraiser

Volunteer and NAMI Rensselaer member Mary Beth Honsinger, NAMI Orange president and NAMI-NYS Board member Dhanue Sannesy and Information and Resource Helpline Coordinator Christine Rickeman at NAMI-NYS Bowling fundraiser.

On Friday July 21st, NAMI-NYS held a bowling fundraiser in support of the upcoming NAMIWalks event on September 23rd. Attendees had a great time and prizes were awarded to the high scorers. It's not too late to start a team or support a team member. All proceeds from the walk go towards supporting NAMI-NYS education, support and advocacy efforts all over the state of New York.

NAMI-NYS Congratulates Judy Watt and

Donna Leigh Estes on their Appointments to the

Board of Visitors

NAMI-NYS would like to congratulate our president, Judy Watt, MSRN on her reappointment to the Rochester Psychiatric Center's Board of Visitors. We also congratulate NAMI Rochester's Donna Leigh-Estes on being appointed to her first term. The Board of Visitors are appointed by the Governor to provide the family perspective on care at state hospitals.

NAMI-NYS Holds Regional Family-to-Family Training in Syracuse

NAMI-NYS wants to thank all who participated in our regional Family-to-Family training on July 14-16 in Syracuse. We want to especially express our gratitude to the trainers, Ann Canastra and Cheri Caiella. We look forward to having all of those trained begin providing education and support in their communities.

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